JOAL Special issue on "Open Science and Data Protection" Part II Commentary: The protection of personal data for the purpose of scientific research and the Open Science framework: Ongoing challenges and future opportunities

Authors

  • Veronique Ciminà European Data Protection Supervisor (EDPS)

Abstract

The following contribution aims to provide concluding remarks on the special issue on "Open Science and Data Protection". Following some general in- troductory considerations, the paper will first focus on scientific research and the GDPR: within that framework, it will address (i) the legal basis for the processing of personal data for scientific research purposes and in particular (ii) consent as a legal basis in research. The contribution continues by addressing the use of Open Data for the public benefit and secondary use of health data more generally. It concludes by looking at the future, in particular at European initiatives, such as the forthcoming European Health Data Space (EHDS) and its objective to enhance data sharing, ensure compliance with the data protection regulatory framework and safeguard the freedoms and rights of individuals.

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Published

2023-09-20

Issue

Vol. 11 No. 2 (2023): Special Issue on "Open Science and Data Protection"

Section

Contents

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